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Multiple Sclerosis
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What's this?

A quality network model for the daily care of multiple sclerosis

L D Blumhardt

Task Force Essentials Group, European Charcot Foundation, Task Force Essentials Group

B JD Vermeij

Task Force Essentials Group, European Charcot Foundation, Task Force Essentials Group

M Amato

Task Force Essentials Group, European Charcot Foundation

O Andersen

Task Force Essentials Group, European Charcot Foundation

G Edan

Task Force Essentials Group, European Charcot Foundation

O Fernandez

Task Force Essentials Group, European Charcot Foundation

M Filippi

Task Force Essentials Group, European Charcot Foundation

J Haas

Task Force Essentials Group, European Charcot Foundation

O R Hommes

Task Force Essentials Group, European Charcot Foundation

P Rieckmann

Task Force Essentials Group, European Charcot Foundation

The urgent need to optimise treatment strategies for patients with Multiple Sclerosis (MS) was recognised by the participants at the 1998 European Charcot Foundation (ECF) symposium in Nice. The `Nice Declaration' led to the formation of a Task Force Essentials Group charged with developing measures of the quality of MS care in Europe. Algorithms for nine critical domains (disability, spasticity, ataxia, pain, cognition, mood, fatigue, bladder function and sexual activity) and `educated guesses' have been developed to measure interventions and outcomes which reflect the quality of clinical decision-making processes. A generic model called a `quality network', consisting of a group of clinics connected to a central server, has been successfully applied to the care of diabetes across Europe. This model will now be developed and applied to MS management, to provide clinicians with longitudinal epidemiological data and, to evolve treatment algorithms and further quality measures. The ECF will next validate the system in a 1-year pilot study using a net of 10 clinics. Finally, an extended European network working in a learning environment will continuously assess, update and improve the quality of care of MS patients.

Key Words: multiple sclerosis • quality network • epidemiology • outcome measures

Multiple Sclerosis, Vol. 6, No. 4, 231-236 (2000)
DOI: 10.1177/135245850000600404
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